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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Hi All
Over the last couple of months I have been suffering from chronic fatigue. I can sleep for England but still get up every morning feeling absolutely drained. I had to go and see my GP last week for a medication review and mentioned how tired I felt. My joint pain has also been increasing over the last few weeks to the point I dread getting out of bed in the morning as everything hurts all the time. I am on my third anti-tnf, Methotrexate and lots of other medication so I was wondering if the anti-tnf was no longer doing its job. I was also wondering if I am starting to go through the Menopause as I was 50 this year. My GP suggested that firstly she would do some blood tests, including checking my Vitamin D levels which I last had done 8 months ago.
On Friday I had a phone call from my GP who said that my Vitamin D levels were almost non existent and I need an urgent very strong course of Vitamin D. She said this could be the cause of my extreme tiredness and also the joint pain. So not everything may be down to RA.
I must admit I very rarely get near the sun (when it is out). Since starting Methotrexate I have become extremely sensitive to the sun and have to wear factor 50 most days and even on winter days as I also suffer from rosacea.
Just a word of caution if you are suffering similar symptoms and have not had your levels checked.
Jackie xx
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Rank: Advanced Member
Groups: Registered
Joined: 8/1/2010 Posts: 255 Location: hampshire
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Hi Jackie, I asked for a vit D test a few months ago as I read that lack of vit D could cause fatigue and achy joints. It showed that I was 'insufficient' and I started taking a supplement. It has made a difference, and as a bonus, my weak and flaky nails are the best they have been in years. However, my blood test this week showed a slightly high serum inorganic phosphate level (I had a print out of the full results) I had no idea what this was so I googled it and it said it could be caused by taking too much vit D. So I think I will take it on alternate days and see what the next test shows. Hope it helps you Sue
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Rank: Advanced Member  Groups: Registered
Joined: 5/2/2012 Posts: 670 Location: where the sun always shines :o
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Hello Jackie That is really interesting. Sorry you have bad fatigue. When I was first diagnosed I bought vitamin d tablets for the winter, when they ran out I didn't bother. It is really interesting factor for me to have a chat to rheumy nurse next week. Take care Jackie. Sending you gentle hugs Jane Xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Jackie
So sorry you are feeling the effects of low Vit D. Do ask for a blood calcium test and a PTH hormone level test as this can all be related to low Vit D. I'm currently awaiting results of nuclear and CAT scans to assess the state of my parathyroid glands having suffered from low Vit D levels.
Take care
Jean
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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 185 Location: Lowestoft, Suffolk
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Hi Jackie I'd done a little research before seeing my Rheumy chap. I'd read about RA and vitamin D. I was prescribed 'One-Alpha' vitamin D and quickly noticed an improvement with the fatigue issue, not gone completely but much better. I now never miss my vit D pill each morning and get sunshine whenever possible. I hope the intense vitamin D therapy will help you as much as it did me. Fingers (metaphorically) crossed. x Angie Be yourself - everyone else is taken. XX
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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I take one alpha too and this definitely helps
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Hi All Thank you for your lovely replies. Not an uncommon problem by the looks of it. Jean so lovely to see you posting again. I am pleased that your knee operation has been a success and was so glad to see you have been attempting a little walk. I very rarely post on the other forum as I don't feel comfortable after being shouted out by another member. I pm Amanda regularly and read all of your posts avidly. Fatigue a little better today. The worst pain at the moment is in the ribs under my right boob. I was fitted with a bra at M & S without the underwire but even this is not helping. I feel as if I want to knock my rib back into or out of position as it hurts so much. Luckily I have a physio session tomorrow so will mention it and see if there is anything I can do to help. Take care Jackie xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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I am going to talk to my GP about this tomorrow. I have chronic fatigue too but whether this is the result of Vit D deficiency, anaemia or the disease, or a combo of all 3 is unknown. But as I am on high dose steroid I am also on daily calcium supplements and the one I use includes a Vit D3 component. Maybe my problem is absorbtion. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Jackie, great to be in touch again. I'm gob smacked that you were shouted out of the other forum. I've missed loads on there as I'm not always up to using the iPad. So sorry this happened to you. I'm getting more mobile and can now get into the car which is wonderful. Nine weeks in hospital plus 6months in a toe to groin plaster cast minus a Knee just about finished me off but I'm tough! Take care xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Pleased to read that things are on the up for you Jean.
You will have to get the pole out and polish ready for all the dancing and don't forget the tassels.
Paula x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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I took vit D for a while and it did help :) how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 1/29/2010 Posts: 264
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Its really interesting about the Vit D thing, particulary as the one tablet I rarely take is the Adcal D3, maybe I'll have another go at it. Also regarding absorbtion, did I read somewhere a lifetime ago that taking vit c helps with absorbtion of Vit D, or did I dream that one up? Sheila
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Pole polished Paula and ready for action. Need some new tassels though ; ) are u OK?
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Joined: 12/3/2009 Posts: 302 Location: Rainham Kent
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What colour this time Jean and have got enough glitter!!!! Anne
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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I've even stuck glitter on my pole dancing wellies, Anne. They look amazing! Waiting for Jenni to choose me some new tassels ;)
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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I've even stuck glitter on my pole dancing wellies, Anne. They look amazing! Waiting for Jenni to choose me some new tassels ;)
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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tassles?heeehhehehhehe how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Yes Jean I am doing fine, thank you for asking. I was a brave little soldier last November and started taking the Magic potion called Enbrel. Three months later at my first assessment was told that I was in clinical remission. Having a few minor wobbles at the moment but really shouldn't complain at all.
I'm doing a blog in the blog section about my journey.
We must have a chat on the phone soon.
Love
Paula x
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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thanks Jackie,
very interesting as we take fatigue as part and parcel of RA.
i will either ask my GP or at my next Rheumy appointment, fatigue is the main thing i suffer with RA wise .. so i can't complain, but if it could be improved then it's worth asking about.
Suzanne x
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Paul Barrett wrote:I am going to talk to my GP about this tomorrow. I have chronic fatigue too but whether this is the result of Vit D deficiency, anaemia or the disease, or a combo of all 3 is unknown. But as I am on high dose steroid I am also on daily calcium supplements and the one I use includes a Vit D3 component. Maybe my problem is absorbtion. Well the results are in and they are inconclusive. Vit D is low but only marginally so. I am slightly anaemic. CRP is normal (well 8) down from 56. ESR is slightly up. And yet I have slept for 5 hours during the day today! GP thinks it may be the steroids which can just as easily make you low as well as high. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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